Managing Type 1 Diabetes | What to Expect After Diagnosis

October 1, 2019

Kai is your typical toddler. He runs and
plays like any other kid. I make sure he’s a kid first then we treat the
diabetes. Type one it is not reversible, non curable and nothing the
kid can do can prevent it. Nobody can prevent it. Our lives in general changed
because you’re taking out a lot of time to make sure he’s healthy. It’s 24/7
365 day and there’s no breaks. You prepare meals by counting every carb. He gets a shot of insulin before each meal or before he
snacks or eats anything that has carbs in it. From the time of diagnosis
over a year ago to now I mean this is just an everyday thing that we just
incorporate into our life now. I was inspired by how Kai’s mom did so well
with the diagnosis. She handled it like a champ. It’s interesting because she’s not
alone. We treat over 1,800 patients here at Nationwide Children’s with type 1
diabetes. The biggest struggle I see in kids like Kai and their families is the
adjustment to diabetes care into their lives. When you’re first diagnosed with
diabetes insulin is a scary thing and such small doses can be such a big
impact. You have to have the right amounts. Can drop you too low you can go
into seizures or coma. The endo clinic in the first two weeks I probably called
20 times because that was my backup. That’s what I needed.
Diabetes care in children is even more challenging than adults because they
grow, they do different activities, they’re eating different kinds of food,
different amounts of food… they need all that for growth development so we don’t
restrict their intake. Your blood Sugar’s have to be monitored to prevent low, to
prevent high blood glucose levels. The continuous glucose monitor is a monitor
that he wears on his arm, stomach or his low back that monitors his blood
sugar every five minutes. His alarm is set so if he starts trending
below 70 or above 300 the alarm on my phone goes off and I can treat that.
Whether I’m with him or not with him he has to be monitored so any caregiver had
to be trained. You’re trusting the caregiver with your kid’s life and
monitoring their symptoms. What’s the outcome I want? That I’m showing him how
important his care of diabetes is. The best part of being Kai’s mom… I guess I’m
just happy that I was the one chosen for him.

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