HEADACHE PAIN & TEARS. (4.24.18)
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HEADACHE PAIN & TEARS. (4.24.18)

September 10, 2019


[Peter] Honey…what’s going on? It just hurts and I need to not cry cuz that’s gonna make it hurt worse. [Peter] Sweetie… ♬ Don’t you think we’re better together ♬ ♬ Oh Honey ♬ ♬ I think we are ♬ Good morning guys and happy Tuesday. Mary is having a little bit of a rough day. Her blood sugar is low right now and… She’s had a headache all morning. She pushed through doing her therapy, but feeling pretty crummy. Good morning! I can’t tell if I’m looking at you, or if you are in focus, but… Hello everybody. I am laying here thinking how very thankful I am that we decided to go to the beach yesterday. [chuckles] I really contemplated yesterday, I was contemplating waiting till today to go, and I’m really thankful that we decided to just go ahead and go yesterday. This morning when I woke up… Well, first of all, I slept way way later than I normally would. We were up late last night um… We got home late and then we had to work on something here at the house and we were just up late so I slept in, which I was really excited about because I haven’t been able to sleep in ever since we got back from the hospital. And so I slept in. I was like, woohoo! I’m so, I’m gonna be so rested. And then when I woke up it was evident pretty quickly that my head was not good. Basically on days when I end up with a headache it is fine when I’m just normal, but once I start coughing the pressure of coughing makes the headache… very stabby and so I took some meds and I was really hopeful that those were gonna help and it has been a couple of hours since I took the meds, and it has not helped. So um and in the meantime my blood sugar ended up dropping and I was out of range of my Dexcom, so it didn’t tell me, but I felt it and it had already dropped, so… Anyway um… Now basically, I’m just trying to push through and get through the afternoon. I’m really hoping that this evening I’ll start feeling better, but until then I am gonna lay here and… I will hopefully see you guys when I’m not having so much of a headache. But um… Peter edited the vlog and… I know he’s got a ton of work that he’s got to do today. Um…he was feeling pretty stressed out earlier. He had to go pick up some prescriptions for me and when he got back I was just asking him, like, are you doing okay? And he said like he just has a lot of Church work. Um… obviously editing to do and a bunch of things, so, I think he’s working away on all of those items that he needs to do, but I would like to be able to get up and help him. But I suppose I will do that when my head feels a little bit better. Um… Yeah, so I’ll see you later. Well. It’s been a whirlwind of a day. I…we slept in this morning cuz we were up super late after we got home from the beach and We watched American Idol. We had recorded it and we wanted to watch the results of that and then we were just up doing stuff around the house and… Once I was up Mary wasn’t feeling good, and I needed to run to the pharmacy and get some meds for her and so you know those days where you feel like you’re always behind? Like you have something to do, but like whenever you get something done you’re like, there’s something else that’s waiting. Anyways, the vlog was that thing that was waiting all day, and I think this was probably the latest we’ve uploaded the vlog in a long time just cuz it was just kind of a crazy day. So I finally got the vlog edited, and it was kind of a more intense editing so it took a few hours to go through… because it was…I laughed so much watching the footage of… if you missed yesterday’s vlog, Mary learned to fly the drone and we were recording with the camera us in the car while she was flying it, and I put that down in the corner of the screen and it was so funny to watch her facial expressions and… It was a lot of fun but today is just one of those days where we’re just like, we are so glad we went to the beach yesterday because Mary does not feel good and you just gotta, I mean it’s one of our mottos is to embrace the moment, but anyways… All that is done. We had emails to take care of and just, I don’t know. It was a catch-up day. But I’m gonna make some dinner. I’ve got some more chicken in the fridge. I think I’m gonna grill the chicken and make like a kale chicken avocado… salad. Thanks for being part of this crazy journey with us. Mary’s up in bed right now. For a while she had, she looked pathetic, she had a headband, like a winter headband over her eyes and an ice pack on her head and I think she’s doing a little better right now. We’ll go check on her here a little bit, but… Oh. Headaches can be debilitating when you need, when your body needs to cough. And her body does need to cough, so we’re pushing through. [knobs clicking] [flame igniting] [pepper grinding] [sizzling] [Peter] Okay, here’s what’s on the menu for tonight. We got [Peter] asian sesame chicken, orange pepper, kale, balsamic dressing and avocado, and [Peter] potato, little round potatoes. So. Guess what? My eyes are open. I still can’t talk like any louder or breathe, like when I went up to go to the bathroom and do my sinus rinse the activity of getting up was too much. In fact, now that I’m talking it’s feeling too much, but my eyes are open. Ice pack… I don’t know if it helps, but it’s there so whatever. Peter’s dinner looks so good. He’s such a good chef. All right. It’s probably like an hour later. I don’t even know. 45 minutes maybe and my head is hurting… Duh. Unnecessary facts that I share. I think what I’m gonna do…oh my gosh. [heavy sigh] I thought that my head was getting…I thought I was okay. I thought I was gonna start my vest right now. Now I can’t decide. Oh man. Okay. Actually I’m not sure. I think I’m gonna just close my eyes for a bit and then hopefully I’ll start my vest. Oh man. I’m feeling so nauseous. Okay never mind. I thought that I had this epic plan to start my vest for the evening, but I think my plans… need to… be flexible. Dinner was good, but Mary is doing worse and um… she’s got her headband over her eyes, ice pack’s on her head and… I put some on the back too, just to see if that would help. Yeah. I really thought it was getting better. I just…I did a vlog clip earlier. Yeah. I thought I was gonna do my vest. Oh. But I don’t know, I feel like obviously it got worse, but… Yeah. I have a verse, a bible verse that’s going through my mind. I went to summer camp, Christian summer camp and… They had us do these memorizing drills, and I’m so glad that I did because those verses come to my mind… at like times like this, but the verse is… You keep him or her, you keep her in perfect peace whose mind is stayed on you because she trusts in you. And it just like plays over and over in my head because of, and I remember like, standing in the grass under a tree memorizing that verse. Hmm. And I’m so so glad I did. That’s cool, there’s peace even when your body is freaking out. Um… what is the Rend Collective song? You are my peace… In my troubled sea. Woah. You are the peace in my troubled sea. I’m so so glad we went to the beach yesterday. [Peter] Yeah, me too. Whew. I wonder if I…I’m supposed to get a haircut tomorrow. If I wake up with this again can you call them? Yep, I’ll take care of it. [Peter] Honey… [Peter] What’s going on? It just hurts and I need to not cry cuz it’s gonna make it hurt worse. [Peter] Sweetie. Oh my gosh. [Peter] I’m so sorry honey. I started coughing. [Peter] Yeah…sweetie. I was leaning on those pillows. [Peter] We made this pile of pillows and she was leaning on it. But I almost threw up so that’s why there’s a towel. [Peter] Yeah. Oh my gosh. I think I’m gonna just take my pills, my night time pills. [Peter] Yeah, you should. I’m really thinking, I’m hopeful that I’ll just go to sleep. And then I’m assuming I’ll wake up okay in the morning. [coughing] I’ve just been working on finishing up editing and putting together the audio and video for my sermon on Sunday. So that will be up on my channel today when this video was posted on Wednesday, if you’re interested in watching that I’m going through the Beatitudes, the first section of Matthew 5, we’re preaching on mercy. So, that sermon is up. I think on days like today it’s one of the hardest things for me is to not be able to do anything, to see Mary in so much pain and just feel helpless and… So, that’s part of it and part of the journey, so. I’m just trying to be present and be here for her and keep moving on. All right guys. It’s dark in here. We’re gonna get to sleep or at least try. Mary took her pills and we’re all just gonna cuddle up and call it a night, but thanks for coming on our day with us. Thanks for cheering for us and cheering for Mary. Everybody give Mary a thumbs up for pushing through today and as always, we will see you tomorrow. Good night! ♬ [Peter] Good night Ollie boy. We’ll see you tomorrow. ♬♬

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  1. One word: OUCH! That day was different than I expected, but we made it through! Should I give a spoiler? I’ll let you know that today…. I woke up fine 🙂 so thankful!

  2. Awwwww 🙁 Mary I don't have CF but I have Lupus as well as several other health issues and I get those severe headaches and migraines I know exactly how horrible the pain is even if you move very slowly the throbbing and unreal pain ! You cry but it makes it so much worse my heart breaks for you 🙁 I get them several times a week and it is just horrible I can not even imagine having to cough with them ! I'm so sorry you have to deal with all you do. I know how thankful you are for Peter always being right there as my husband helps me alot as well and I thank God everyday for him. I just love that in the midst of all the pain you calm your self with God's precious word 🙂 You and Peter are an inspiration to everyone 🙂

  3. It breaks my heart to see Mary in such pain. Peter's tender loving care is heartwarming. Praying for you both every day, Mary & Peter! 💞

  4. one thing i've done for relief is applying pressure back against my chin, when coughing, which seems to reduce that sharp pain and strain on those muscles… it may help by keeping the headache from intensifying

  5. I’m so sorry to see you in so much pain 🙁 I suffer from migraines almost daily due to my neck instability and EDS this Ice Kap has been a life saver. Your arms are free so you can get up and move around and the ice stays in place. Its got a fleece lining so it’s super comfy too and It’s long enough to cover your eyes too I highly recommend this. Praying for your pain relief you are not alone. Stay 💪🏻 you got this! 😊💜

    https://www.amazon.com/gp/aw/d/B06ZY6348Q/ref=mp_s_a_1_6?ie=UTF8&qid=1523312880&sr=8-6-spons&pi=AC_SX236_SY340_QL65&keywords=icekap&psc=1&th=1

  6. Have you tried a heating pad for your headaches? I get bad headaches and I'm able to get some relief by laying my head on my heating pad. It kinda feels like it's burning the pain away. Also, try hot baths. Ice packs make my headaches worse. I feel for you 😔I couldn't imagine having to cough with a headache.

  7. Maybe try ringing her Dr or get back to the hospital if her pain doesn't ease up? Get well soon Mary!. Prayers and thoughts to all 3 of you! 🙏🙏🙏🙏

  8. So sorry you're not feeling well. I hope you start feeling well. 💙 I haven't been feeling well either. Been getting really bad headaches as well. Not sure why. Also had a HSG done (used dye to x-ray my uterus and tubes) which was really painful and I've still been in a lot of pain from it. Felt so nauseous this morning and felt like I was going to pass out. I have a heating pad on my head right now trying to get my headache to go away or at least feel better.

  9. Best song for a headache well for my is
    me myself & hyde by ice nine kills and memories by beyond unbroken. Ps this is my first comment on your videos

  10. I dislike seeing Mary like this, it hurts my heart so badly!
    Lord,please let your healing blood flow down and cover Mary! We believe in your word and your love, Lord! In His name we pray, AMEN!

    I use a heating pad on my head or sit on my shower chair and let the hot water sooth my head. Could be worth a try, Mary! XOXO

  11. I get migraines when I get tooth infections,long before I feel it in my teeth. Unfortunately it's season headaches that mix in that I can't tell the difference…im prone to them.

  12. So sad that you have had such a bad day, Mary. You are such a superstar, battling through. Much love to you and Peter, and not forgetting Ollie! xxx

  13. Are all of Mary's ailments related to her cf? Like the blood sugar problems. I'm not sure if she is also diabetic

  14. Oy that was difficult to watch. I'm glad you're feeling better. Being is pain is never easy I have chronic pain amoung other health issues. Embrace the great days. Wake up thank God for waking you up finish you're day and continue on with a smile. That's how I do it most days. If you can smile at someone else atleast it not only makes you feel better to smile. It makes someone else's day better too who maybe having a cruddy day. Be blessed all 3 of you 🙂

  15. god will heal you God bless i complain about my pain and my teeth are so bad I get toothaches but then I think of you and others that are so sick and my wonderful dad that pass in Jan of kidney cancer all I can do is cry I want him back so bad .. God bless you and your family…..

  16. I used to get debilitating headaches and migraines. My doctor told me to take an herb called Feverfew. I get it at a health food store. I know you take a lot of medications. But do some research. Sending hugs and prayers.

  17. I have a rare disease called Pulmonary Hypertension, or too much pressure in the lungs. I am hooked on a 24/7 IV pump which gives me Flolan every forty seconds, a medicine that opens up all my blood vessels. I have suffered from severe migraine and headaches all my life as the Flolan causes such constantly; I quickly realised I could not swallow additional headache medication every day so I looked for alternatives. The best I could find, and what I use to this day is average tiger balm (it should be available in Walmart or Walgreens), specifically the red one (it comes in two strengths). What it does it basically burns the skin a bit (due to essential oils, it is made for muscle and pain relief) which always helps me focus on something else than the headache.
    It might not get rid of the underlying cause of the pain, but I always find it could help me deal with it mentally a bit better!
    I have been following you guys for a while now and find you adorable, my boyfriend is also called Peter (:

    Feel better,

    Best wishes from Vienna, Austria

  18. BIG thumbs up for both of you!! Mary, there's is never anything "unnecessary" you could share with us. We draw strength from you (and Peter, of course) and you're both so inspiring for sharing the good AND the bad! Because no matter how bad it gets, what we see in the vlogs is that you both stay positive, hopeful, & faithful through it all. Anyway, I gave a thumbs up for all the reasons above. But I'm so sorry you had to go through that. But so glad you're feeling better now!!

  19. Aww Peters face while he’s holding Mary’s hand while she laying in bed 😔 you can see how much it hurts him when she’s in so much pain. I hope someone love me that much one day.

  20. Mart, I could feel your head pounding😟. Was glad you added an ice pack. Over the years (and I've had a lot of them), I've found that ice therapy is a terrific adjunct to medication for pain. I've used it for back, head, knees and feet. The medication seems to work faster and lasts longer. I used to bring a super-size pack to bedso it was'right there' for me to put my feet on when the neuropathy pain was at its worst. The meds only did so much😑😞😟. I've already sent a request off for the help you need to push through this. God bless, Patricia up in New Hampshire

  21. OMG Mary, this headache must almost have killed you!!! I am having migraines too, but nothing compares to what you are going through!! OMG! I hope you are feeling better now and maybe have a better day! So thankful for your supportive husband! Peter, you are amazing!
    Thanks for sharing your bad days too. It shows that the world is not always a fun place!
    I pray for you guys! greetnigs from Germany. sincerely Britta

  22. 👍👍👍thumbs up in support Mary, you guys are amazing, your spirit, your marriage, the way God just shines through you both! You inspire me to "do what I think I can't do" each and every day!

  23. Understand! I get *extreme* headaches but at least I don't *have to* cough to continue living. I wish God could send you a special bubble where everything is quiet & calm inside & out (with Peter & Ollie inside it of course!) where you could get rid of your headache!

  24. I read some where that if you have a migraine headache put an ice pack on the back of ur neck and put ur feet in hot water as hot as ur can stand as the hot water draws the blood to ur feet sit like this for 10–15 minutes

  25. I am so sorry about your headache. So debilitating! I'm praying that Wednesday & Thursday are so much better. I'm wondering if you need to let your doctor/team know how bad this headache was for you… Maybe it's related to getting off the IV antibiotics. Never hurts to ask, right? I'm praying for you both & your happy family. So appreciate your thankfulness & Scripture focus in the middle of the storm. God bless you both.💕

  26. Oh my god. I this a cf thing or what? I had the same problem last night and I was crying and screaming and took a lot of headache medicine and it didn’t help. After awhile I just randomly started throwing up while I was taking a shower n I couldn’t do anymore so I just laid down with ice pack on my head and slept the whole night and it was only 3pm! I feel angry at myself for not being able to hang out with my family!

  27. Hey guys wanted to check on Mary see how she’s doing today I hope and pray that she is doing well we all love her in the Lord loves her so he is with you guys always please give Ollie a hug for me. And I’m sorry Mary but I can’t remember your husbands name for some reason I had brain surgery years ago and it’s messed up my numbering and I hope that he can forgive me for that as well but you guys are amazing keep the light shining and make more of those crazy videos or Mary’s flying the drone.

  28. I’m just about to end up in a puddle of tears! Between Mary’s tears, and the emotion in Peter’s voice, I’m about to cry myself. 😢 Feel better soon, Mary!

  29. Just wondering if you have ever tried heat? I have had some bad headaches and migraines in my life and tried heat and it seemed to work better than the ice did. Just a thought.

  30. heahache pain leaves
    you so helpless, it just
    stops your world, Stops
    you in your tracks. Prayers
    for comfort, hope, & healing
    miracles continue to cover you.♡
    Wishing you both a more resTful,
    peaceful goodnight, & a
    better tomorrow. ☘☘☕☕🏡
    《°°MeeMaw Judy 》~~~~~☘

  31. He is so sweet to you AND YOU are so strong. I personally struggle with migraines and sometimes people around me just blow it off as a headache "just take some advil" but it's a lot more difficult than that!

  32. Please try soaking your feet in hot water and put a cold cloth on the back of your neck next time you have a headache. It sounds crazy but works

  33. When headaches get bad she should try cinnamon and caffeine they both open blood vessels in the head and can help better then meds and I'll be praying for you both

  34. Peter, I love to see how much love you have for Mary and how you are 100% there for her when she is struggling. I love you guys so much.

  35. Awe Mary I hope you can find some relief with your headache 🤕 I love you hun!! ’xoxo’ GOD BLESS!! 🙏🏽🌹💛

  36. 👍👍Rend Collective👍👍
    🙌Hearing you guys sing Brave a few days ago was a great reminder of who we are in Chriat🙌

  37. You always make me cry when you cry, (and dont feel sorry for that, we care for you and your well being and we feel your sadness along with your happy moments), you never ever say anything unnecessary Mary,, Peter you are such a loving husband what a team you two make,, many blessings and prayers go out to you both

  38. I hear you, those few days I had the flu my head hurt so much I honestly thought it was going to explode. Have never experienced such a thing. Seriously hoping to never again! Glad you made it through!

  39. That Bible verse and the Rend Collective song are two of my favorites to keep in mind and listen to when I'm having a physically rough day. God's Word will never return void. 🙂

  40. an amazing testimony to "In everything give thanks."
    When my mom lost her husband after 76 years, she would talk about dad and start to cry and then say, "But I have so much to be thankful for." What would we do without Jesus?

  41. Sorry Mary that you have to go through this. And Peter, sometimes the best thing you can do for someone is just be there for them.

  42. I love y'all so much! Stay strong! Every day on the way to school I pass Frey St. And I always smile. Just thinking about y'all makes me smile. Just passing that road and thinking about y'all makes my day so much brighter!😘😘
    Peters hair looks like Oliver! I love it! I think the long hair and bushier beard looks so good on Peter!

  43. I have chronic migraines, and I know it's a bit different than what you were going through, be putting like a hot/warm wash cloth over your eyes really helps headaches. I have a sleeping mask full of rice that you can microwave and it's a lifesaver! Maybe that would help!!

  44. Headaches are intolerable! Hope it’s gone sweetie. You are so fortunate to have a compassionate fella!! Peter, your awesome!! You two should consider a small recipe book with Mary’s art work💞

  45. oh mary. my heart goes out to you! I have sinus issues that also comes along with the occasional severe headache. SO glad you woke up the next day feeling better. You're a champ.

  46. My heart goes out to you every time I see you with one of these dag blasted headaches!  I get horrible migraines and I also get primary cough migraines when I get bronchitis, so I can't even imagine.  When you were talking about the Bible verse going through your mind over and over it actually made me think of something that occasionally (not always, but sometimes and it's definitely worth it when it works) helps me and it's called binaural beats.  It's repetitive sounds/beats and frequencies that you listen to that help you relax.  I find that it takes my mind completely off the migraine to the point sometimes where I feel like I'm in a nearly meditative state.  I say it doesn't always work because for the most part after it's over the migraine is still there, but heck even the relief while I'm listening is sometimes enough to keep the tears at bay for a while.  They have some videos on youtube that are pretty good.  I just put "binaural beats migraine" in the search and try out a few until I find one I like.

  47. Just want to say what an inspiration y’all are to me I have panhypopituitism which means I have inactive pituitary gland which effects almost everything in my body nothing works for itself I don’t make stress hormones which can be life threatening I’ve been really struggling lately with my health and haven’t been myself but wanted y’all to know God is using y’all in a great way so thank y’all and God bless also will be praying for you

  48. God bless you both. The way you take care of each other gives me hope that some good still excist in this world. Love you both🤗

  49. I hope you started feeling better! I hate migraines and coughing together does not work! Mary sweetheart im so sorry!!!

  50. I get chronic migraines and watching you in this video girl I feel that pain. The nausea makes it a million times worse and and then when you vomit the pressure hurts so bad! I can't imagine the coughing oh my you are a trooper!

  51. Do you or can you, try Imitrex? I have a birth defect in my brain, which causes severe headaches and that is the Only thing that works. 10-20 minutes and my headache is gone.

  52. I get migraines every month in my eyes and makes me be sick.
    My hand goes numb about an hour after the migraine starts then after my hand going numb half an hour later I start being sick

    I got a migraine at Alton Towers a few days ago

    I went on the smiler and it was so fun
    The smiler is the first loop ride I have ever gone on 😂

  53. I use a mask over my eyes for the light maybe this would help your head aches Mary watch you guys all the time as I have lung problems also

  54. You poor poor young lady. I feel so deeply for you. I’ve had migraines and I can’t even believe how much your head must hurt with the coughing from the CF. God Bless you for being so strong. It’s Friday in San Diego, CA. I know your headache is gone, right now. However know that I will have you three in my thoughts and prayers.

  55. I do get painful migraines. I use ice packs to minimize the pain. Cold showers works best for me mixed with slow breathing like i'm meditating, everything will start feeling slightly less painful.

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