EDNOS DOES NOT EXIST!   Mental Health Videos with Kati Morton | Kati Morton
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EDNOS DOES NOT EXIST! Mental Health Videos with Kati Morton | Kati Morton

August 26, 2019

When the DSM-5 came out, uh, last March I believe it was, or April. It changed EDNOS. EDNOS no longer exists. For the pure and simple fact that all the information out online already has EDNOS in it and it’s easy to search and it’s the easiest way to talk about it, I still, in my own practice call it EDNOS. Because Eating Disorder Not Otherwise Specified sounds a lot better than ‘Other Specified or Unspecified Feeding or Eating Disorders”. And the reason that they say specified or unspecified, if someone, let’s say, comes into the ER and they know that they have an eating disorder, but they don’t know enough about the patient to even know whether they meet criteria for one or the other, or whatever, they say “unspecified”. Because they don’t have the information to specify why or why not a client doesn’t meet the criteria for one of the other eating disorders. Does that make sense? So they’ve kind of changed it, and they’ve also changed it to include feeding disorders. Which, I’ll do a video on this at a later time but that includes things like Pica or rumination, there are a bunch of different things included in this now. But for the sake of what we talk about and what I’ve talked about in the past, I want to talk to you about what EDNOS means. And what Eating Disorder Not Otherwise Specified meant for a long time. The second thing that I want to mention, is the fact that if you’ve struggled with EDNOS and you’ve had that diagnosis before we had these changes, right? You’re just as sick as anybody else with an eating disorder. In fact, I often worry the most about my clients with this because I know a lot of us, in that negative voice that’s wrapped up in our eating disorder tells us, “you’re not sick enough, you don’t quite meet the criteria for any other eating disorder”. And it monopolizes on that right? And it just takes that and runs with it. When really, from a clinician’s standpoint, we get more scared. Because oftentimes my clients, who I end up diagnosing with EDNOS have been sick for a really long time. Which leads me to my next fact, that it’s hardest to diagnose. Because oftentimes it won’t look like they have an eating disorder, and then it will, and then we’ll think “oh maybe it’s this, but oh it’s not quite that, well maybe it’s that” and they will go a long time being sick before we even know what they’re actually struggling with. And so, if you haven’t checked out my other videos about the facts of anorexia, the seven facts of anorexia, or the seven facts of bulimia, you can struggle with all of those things, because what the eating disorder NOS means is that you’re hopping from one to the other, and we don’t quite do this one maybe enough, but then maybe we’re doing this, so we can purge, that can be part of our eating disorder behavior. And so we’re harming our esophagus, our teeth and enamel is becoming corroded. It can also mean that our cognition is impaired, because we’re not getting proper nutrition. It can mean we have osteoporosis because we weren’t eating enough for a long period of time. It can mean a lot of different things because we’re hopping from behavior to behavior. And that doesn’t mean that the behaviors are less hurtful or harmful to our bodies. They’re still just as harmful. So I would encourage you. If you worry, if you’re wondering, “Hey Kati, I’m doing something only these many amounts of time a day or week or whatever, does it mean that I’m really sick, cause I don’t really think…” You’re sick and I’m sorry. Eating disorders are scary and they’re harmful and the sooner we get help, the better. And that’s why I’m here, right? We’re working together to break through the stigma. Just because we have a different diagnosis doesn’t mean we’re any better or worse than anybody else. We’re here to get better. We’re here to help one another and recover. The more harm we do to our bodies the worse, right? We want to get help earlier, we want to get help faster, and get treatment and work harder on our recovery. And you can even let me know if there’s a topic you want me to talk about, but know that EDNOS or Other Specified or Unspecified Feeding or Eating Disorders are just as serious as any other. And the sooner we can get help, find a therapist, getting checked out by our doctor, meeting with a dietician, the better. So let’s work together as we break through the stigma and we work towards a healthy mind and a healthy body. Subtitles by the Amara.org community

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  1. Not even going to lie, I stayed up until 3am for you to upload this video! Thank you for uploading! Goodluck with your test!!♥

  2. #KATIfaq It would be really nice to talk about how friends can influence you to almost get an eating disorder , because I think I got myself into one even tho I DON'T blame ny1 for having it .But I would say it kind of triggered it and now idk how to explain it to her or evn ask for help :/. Plus I really hate hiding stuff from her because we're really really close.

  3. They Should Of Just Left It At EDNOS Its Easier To Say. Ive Tried To Get Help With My Eating Disorder. But Im Not Sick Enough. Ive Had It For 4Years Now. Hard To Get Help In The UK. What Do I Do? Im Sick Of This. 🙁

  4. Hi Kati, I tried to get onto your website just now and it said "Access Denied
    This site is protected by the Stop Spammer Registrations Plugin.
    If you feel that you have been blocked in error, you may notify the Admin and ask to placed on the system white list. This site's admin will be notified and can review the reason why you were blocked." I'm not sure if I got blocked or if it is a bug.

  5. Thanks kati! good luck w study 😉
    ps. have been watching your vids for the past few months & making small steps in the right direction. since last wk after the last 2 Monday vids i've decided to take some serious action in recovery from ednos, in collab w my current therapy. thanks for straight talkin'!  I think i'm feeling a little better already. keep being awesome! xo

  6. How should I talk to my parents about the fact I may have an eating disorder? ive been starving all day and then eating 'too much' in the evening for about 2 years and bc of my eating 'too much' in the evening I have only lost a stone in two years I really struggle mentally but I feel no one will take me seriously bc Im not losing weight Im worried about my health as ice been having heart palpatations my pulse hs sometimes gone down to 42 my hair falls out and ive never had a period im scared for my health but I feel like everyone will think im a fake bc I never lose weight and im scared they will just say its just a phase (bc I was 10 when all this started) now im 13 that can't just be a phase can it? I want help but don't know how to get it please help x

  7. waw. like it wasnt complicated enough. They should have just called it eating disorder not seriouse or important.
    Heya kati, is the criteria the same for this newly named EDNOS ? xox

  8. #KATIFAQ – I really need help with loss and grief. I have been struggling and it's affecting my marriage and family life. Loss 4 pregnancies and now a total hysterectomy which led to MRSA and I am on so much Xanax to function and even then I find myself in bed all day… Please give me some advice .

  9. I don't like this change. I feel like it makes people that don't have bulimia or anorexia seem like they don't really have an eating disorder. I don't know, for me it is triggering. So I always feel like I have to fit into the anorexia category.

  10. So, yeah, I'm 15 but a total psychology freak. In my opinion the DSM-5 was a big mess. :-p I think the "OSUEFD" label instead of "NOS" helps with grouping food issues under a large category, but that's not necessarily always helpful . . . Can't say for sure, not a clinician, haha.

    Also, yes, the negative voice can really pound you with the "NOS = not really sick" thing, but it's good to remember it's not true.

  11. aww yay I was hoping you'd make something like this! ^_^ Thank you for being awesome and I hope all of your studying is going well 🙂  

  12. but if it is still serious they need to give it a name that doesn't sound like "not good enough"  "no official name" because that's what it sounds like. I mean if  obesity is now considered a disease, all the  habits/patterns/thoughts  that don't meet one  should have a REAL name. >.< 

  13. dumb DSM! ha…I know I know it a useful tool to help treat and share information among therapists and in the mental health field. I personally could do without all the diagnosis and name jargon.

  14. i was diagnosed with ednos like 3 years ago…i was really overweight wen i was first diagnosed and purging and restricting a little then which lwas disordered but still no one really cared..or took me seriously…my mom down the idea of treatment wen i first wanted it…now that i have 20 more lbs to lose until im underweight now people wanna be concerned but im over it…my ed has changed over the years and now that part of me that wanted help wanted people to care wen away and is replaced by this resentful angry person who wants to be left alone:(.. im pretty sure things would be different if u were my therapist or i met a therapist like u!  ive given up on therapy too…my last therapist kept reminding me how not so bad my ed was/and was just insensitive in general..treating me like i was on a diet

  15. In my mind, EDNOS is basically a mixture of both other eating disorders but with a skill of manipulation added into the mix. Like, if you need to make yourself seem not sick for a day, a few days, a week, you can, but then you try to make up for it when you're able to hide it… does that make sense Kati, or anyone diagnosed with this? (If this comment is triggering I understand but I hope it's not!)

  16. I love all your videos and you have helped me through a tough time! At the moment though at sick of people telling me I'm angry all the time and need anger management! Could you give me some advice on what to do? Am really scared and giving in to my self harm and eating disorder urges… Help 🙁

  17. -_-

    What the fuck.

    I thought they changed it to be less "Catch all" :/

    Like Atypical Anorexia, the new things for Bullimia.

    Because people flat don't take EDNOS seriously.

    T's may take it seriously but everyone else doesn't…

    Hell – My Anesthesiologist told me I was lying and making up disorders when I told him I was diagnosed with it. Even with laying out all the specifics. Then told my surgeon (Colonoscopy) that I "Said I had an eating disorder, but he didn't believe me."

    SHE Did, luckily, but FFS.

    I hate the EDNOS label. I hate the people who don't take it seriously. And I honestly feel it means I'm not sick enough and not worth getting better because if I was – Then I would've met the fucking criteria for another ED.

    But no. Because I'm overweight, I'm not fucking sick enough. I'm not "anorexic enough."

    And people throw that back at me all the damn time.

  18. So I don't think I have an eating disorder I don't purge or binge or not eat when I'm hungry but sometimes I won't eat as much as id like to and I workout like 1 or 2 times a week do I have an eating disorder?

  19. #KATIfaq I think I might have an eating disorder bc I meet all the criteria for anorexia but I don't meet the weight criteria. Does that mean I'm not sick? And should I tell my therapist? Thx

  20. Gosh Kati, your great. I'm so glad i'm subscribed to you. I stooped going to therapy last year because I found that me and all of my councelers after years, end up not getting along. I was in therapy for 9 years. So seeing content from you gives me that since of steadiness in my life that i haven't had in so long. 

  21. I've self harmed about 2/3 times I'm scared I won't be able to stop I'm only 14 so if I told someone it would ruin everything any advice ?

  22. You're right Kati. The truth is that regardless to the type of ED you have or level of severity doesn't matter. The core of it is still the same. I think we all need to be so careful about letting these "labels" get to us and define who we are. That extra fear is not helpful in the midst of all the other 100 fears that come with having an ED. 

  23. Oh here in sweden "EDNOS" is actually called "UNS" and has been for so long i know. 🙂 It means something like "without further specifications" if translated word by word.

  24. They Should Of Just Left It At EDNOS Its Easier To Say Haha. Ive Tried To Get Help With My Eating Disorder. But Im Not Sick Enough. Ive Had It For 4Years Now. Hard To Get Help In The UK. What Do I Do? Im Sick Of This. :(

  25. #katifaq Okay, question. My eating disorder started when I was 8, long before any of my other problems. I went to treatment in October 2012 for it where I realized I have also been dealing with alcoholism for a long time, but not as long. I'm now currently struggling with relapse of alcoholism and my eating disorder while trying to recover from drug addiction. I'm in an outpatient program currently for all these things, but I'm trying to get to inpatient. We are however, having trouble finding a center that I have means to get to that will deal with my eating disorder along with my alcoholism and addiction. There is one place that I KNOW will deal with both and provide a safe place to detox, but we are not getting anywhere with my insurance company to get me there. I guess my question is do alcohol/drug treatment centers generally have any idea how to handle eating disorders? I know it depends on the place, but in a general sense? Can anyone help me with this?

  26. I asked my therapist about this and what I would now be and she told me that insurance companies have NOT caught up yet to the changes of the dsm5 so right now EDNOS still exist where the news ones don't…. So have you found that when it comes to insurance companies that they have not changed yet and in fact EDNOS still exist as at least here in Washington state they have yet to say when they are updating the systems to take all the new EDs or other things that have changed.

  27. I can't find any info anywhere for a person who hates food but doesn't care about weight. She has some OCD like anxiety and social anxiety and wakes up nauseous at times and has some negative associations with food but has no desire to talk to anyone about it.

  28. #KatiFAQ  I recently switched my meds over to my primary doc at my clinic because I no longer go to the treatment center I had been getting them at. Anyways, my primary doctor knew about my eating disorder because I saw her a few times before I went to an eating disorder treatment center a couple years ago. I have been in recovery for about a year though. So, I went to my doctor for my meds and she just kept talking about my eating disorder and weight and asking me a bunch of stuff that made me feel super uncomfortable. She even asked why I had an eating disorder in the first place like I had chosen it, it just made me super upset and I ended up leaving feeling worse off than when I came, and I started feeling self-conscious about my body. She didn't really talk about my depression and anxiety which I was there for those meds. I just feel that she wasn't helpful. I asked my mom if I could go to another clinic but she doesn't think I need to. I just feel that a med specialist or a psychiatrist would be a better fit and a different primary doctor too. What are your thoughts on this? 

  29. If my only symptoms are nonstop obsessive thoughts of food…periods of restricting, periods of purging, and periods of binging…does that mean i have an eating disorder? I know it might be a stupid question. I'm sorry.

  30. That's what I really don't like about the DSM 5 (sp?). "Feeding disorder". We're not animals. We don't FEED. We EAT. It makes us sound… like animals… I'm staying with EDNOS.

  31. i have an idea on nursing students/graduate nurses with eating disorders. Often time we are so intelligent and quick at seeing problems in other and fixing everyone around us..its something I'm struggling with….

  32. How do I help my best friend with EDNOS, i told her mum and her mum found her diary with all these thoughts in like she hates herself and that she cuts and her mum found blades in her room but she still is in denial and actually thinks im lying, i dont know what else to do please help

  33. i was diagnosed with ednos a few months before that, and even now the doctors and specialist still call it ednos because no one bothers with the new name

  34. I have a type of eating disorder because of an anxiety disorder, i usually eat quite a lot but as a coping mechanism i stop eating meaning I jump from one to another. I've had this for 5 years on and off, and i believe it's EDNOS? but i dont know if it's constant enough. I don't know if this is normal or if anyone else has this but on top of going from eating everything to nothing my mind sets to different coping mechanisms like dissociation, ocd symptoms etc because of anxiety.

  35. Hi Kati, 
    I just found you one the interwebs today and think you are phenomenal! I realize you are very busy and may not even see this comment, but I was wondering if you have ever encountered eating disorders in conjunction with diabetic patients (diabulimia as it is often coined)? It is something that seems to be trending a little bit more and was wondering about your or your friends in the health care world experience(s) with it. Thanks so much for all of your dedication to your followers on social media, as well as the excellent care that I'm sure you give your personal clients! #katiFAQ

  36. Kati… I'M sorry but the part where you said "You're sick" really offended me. I've been diagnosed with Anorexia Nervosa and I understand that it is terrifying because I don't even feel like myself when I fall back into those patterns. Why are people labeled as sick when they have an eating disorder? It just means that they are struggling.

  37. #katifaq  Hey Kati, love your videos. My question is, is it possible to have more than one eating disorder? I have a problem with my eating, I know that, but the issues fall into both anorexia and binge eating disorder. (Binge, then feel guilty, then restrict for days at a time, then become malnourished, then binge again.) Does this mean I have EDNOS, or can I have both at the same time? Thanks so much.
    (And anyone else who knows what they're talking about, please feel free to comment.)

  38. my sister made me go to my doctor to talk with him because I was purging,binge eating,restricting(my behavior about food and weight wasn't normal)and I told him that I was worried because of all those things and I told him that I thinked I am a bulimick and he said,,You are fine you are not a bulimick but if you dont stop you can die,,So my question is ,what the f*** is wrong with me?!

  39. 3:25 how you're saying that kind of motivates me to think about getting help. I've often thought about it, especially when I'm binging&purging, when I'm restricting I actually think I'm fine and feel energized. But I don't know which doctor I could tell, who I can trust, who would understand me 🙁 and am I ready for this? I'm having problems with food and eating since I'm 13. I'm 22 now. Nobody really noticed. First when I lost lots of weight last year and became underweight. Also I'm still scared about weight gain, not only because I'm a figure skater..

  40. Hi, I heard that DSM-5 doesn't specify Asperger Syndrome exclusively anymore, but rather as an autistic spectrum disorder or pervasive developmental disorder. Why are they altering it and confusing people. its very interesting but not in a sinister way..

  41. I can't keep my diet steady… I can go one day eating all day constantly and then I can go many days not eating and not really noticing…

  42. I was diagnosed with ednos….I didn't binge but I purged and I restricted however didn't lose the 10%bodyweight or what ever it was….I couldn't get the help for it that I needed (impatient) because I didn't met the criteria….and now there saying it's not…I'm not guna say what I ate and how much I lost as don't want people to use as tips or trigger….I suffered from 17 till 27….the moment I was cured was when I had my beautiful daughter….it's sometimes a struggle in my head, however to me it's cured.

  43. I have a quick question
    I post my self harm and I'm trying to stop because it may trigger some people but sometimes it helps to vent and stuff. Most people have anonymous accounts but I talked to all my friends from that account, I can't tell if it was a cry for help, a cry for attention, or just a way to feel less alone. Can you help me figure out my own actions?

  44. Story of my life! NEVER SICK ENOUGH! Used to be bulimic with strong anorexic tendencies, but now it's just EDNOS. I feel so trapped!

  45. Hi Kati, I'm not sure if this will make any sense but I do a lot of excersize after binging and sometimes after 'normal eating' or just food I deem less healthy. I also exibit some minor orthorexic tendencies (I don't eat animal products and I try to stay a way from bread and pasta) could this be considered as OSFED? Thank you x

  46. I didn't hop from one to the other. I was pure anorexic from 14 to 25. I just have genes that don't allow me to become boney. I flew under the radar. It's dangerous! I never got help because I wasn't boney. I was blacking out 2-3times daily.

  47. I'm confused what I have. I restrict myself eating completely then every one-two days I'll binge and purge. I think it might be ednos but nobody seems to think there's a problem, and that its just an irregular eating pattern.

  48. I don't know if I have an ed or a phobia… I have a severe fear of gaining or losing weight. I will eat a lot in private only to the point of feeling sick and then it makes me feel sick in every other way as well. In public I used to have a lot of issues eating…

  49. Not having a diagnosis it's frustrating. If someone tells me "you have this" I can work with that. Right now I don't fit anywhere and I'm too fat to seem like "my health is at risk" so I guess I'm just a lazy idiot too obsessed with calories but not enough to have an eating disorder. My ex-therapist suggested I should sleep more… I guess is hard to diagnose an ED to a fat person.

  50. I went to a clinic for eating disorders. I didn't get to come there more than like 5 times or so. Why? Because I didn't fit the criteria for either anorexia or bulimia. When I mentioned this to a therapist she was shocked how they apparently didn't accept ednos as an eating disorder.

  51. idk if i have an ed or not. i've been struggling with disordered eating for about 2 years, and battling with my weight for around 4. i basically restrict, binge, then eat 'normally'. i do this cycle at least once a week, and i've been doing it for nearly 2 years. i'm just so shit at restricting my calories, but i'm too fucking lazy to exercise.

  52. I can't have food at home because i binge on everything i have, so i buy  food everyday and i usually buy sweets because that's my only weakness and if i only eat what i really crave, i can have less calories per day.
    I think i had anorexia, and right know i don't know what i have, but i never change my thoughts: i'm wanting to loose weight, trying to cut my calories, and feeling safe when i restrict, but i eat everyday because i need to function at work, even when all i eat in a day is a pack of oreos 🙁

  53. Im recovered but I've still needed to hear what you've said in this video for years! I was Ill for 10+ yrs hopping from Ana to bulimia to edno s and back, and the diagnosis screwed my head up still does, and I had some bad experiences with dieticians and therapists as a result and recovery was delayed massively because of this attitude surrounding it. Thank you for your knowledge and clarity. I'd love it if you could do a video on long term affects post recovery I've had a lot of complications since, digestive, joint pain, fatigue, miscarriages and I'm often dismissed a lot when trying to find reason and solutions.

  54. For years I have been trying to figure out what is wrong with my eating habits. When I was about six or seven when I got stressed I wouldn’t eat. Growing up I never had control over hardly anything ever. But then I hit teen years and started working out way more than usual. When stressed I wouldn’t eat and I don’t mean I wouldn’t eat for a day or two no I’m talking nothing at all for months and not even notice. If I forced myself to eat I would get sick. Nothing worked until stress came back down. I diet often work out very often. Went threw a bout of depression and stopped eating this year which lasted for almost 5 months of maybe eating once a week. I dropped 30lbs in the last several months. I’ve since have been able to start eating again once a day…..but I’m trying to determine if this falls into eating disorder categories or not because nobody seems to know what’s wrong with me

  55. I really wish every doctor cared like you do. Eating disorders don't get talked about enough. I have received so much backlash bc of it, professionally and in everyday life. There isn't much help available for us who really badly want to know what it's like to "normal eat" without feeling guilt.

  56. Wow this chick is AMAZING I want to be able to communicate like this with no judgement and so much compassion #GOALS

  57. I think it’s treatment services that reinforce this stigma and the fact that it’s not taken seriously, in the UK anyway

  58. I just starve sometimes and sometimes I over exercise but my body still wants food I cant purge but I do Also have binge episodes

  59. thank you so much for letting me know about EDNOS. but i could not find the workbook on your website. how can i find it? i need help about my ed…

  60. Huh interresting, the same thing happend with ddnos dissociative disorder not othervise specified
    Its now osdd other specifed dissociative disorder

    I think that on was party for the better 🙂

  61. ive had anorexic symptoms for months then bulimia symptoms for months back and forth for years but haven't been diagnosed bc when im at a 'normal weight' no one cares

  62. I know I'm SUPER late to this video, but they diagnosed me with bulimia even though I don't fit all the criteria. Ie, I don't always BP enough for the criteria, sometimes less and sometimes way more. They just diagnosed me with it because I have Medicaid and if they diagnose me with osfed/ednos I wouldn't be able to get treated outpatient for the issue.

  63. I wonder if I fall under it too because even though I for the most part practice healthy habits, I tend to restrict a lot and if I know I go over my limit, I’ll make up for it by exercising and restricting even more. I also think about more bulimic habits but I’ve never actually done anything to have any diagnosis. The worst part is that I’m overweight so it’s impossible for any doctor to understand.

  64. Kati I was told that I have EDNOS and I have been dealing with. I am trying to get more help than what I am getting now.

  65. I got diagnosed with EDNOS in 2002. I didn't meet the criteria for anorexia because I still had my period but my weight was in the range of anorexia. I felt so so awful to find out I wasn't sick enough to be considered anorexic. It made me so angry that I still had to gain weight. I didn't know how to talk about it to people because j felt like I was lieing to people of I said I had anorexia but they also wouldn't understand if I said I had EDNOS 🤦

  66. I have this and it's so frustrating coz the eating disorder clinic won't help me coz I am "don't have an eating disorder" bitch they just diagnosed me with an unspecified eating disorder it still counts!

  67. If I restrict to 700 calories a day but have binges about 2 or 3 times a week but I don't purge and barely exercise so do I have an Ed?

  68. I've struggled with compulsive over eating for my entire life, I've struggled with bulemia and anorexia interchangeably since age 13. I'm in my late 20s and it never truly goes away… The Bulemia started from the over eating, the anorexia started when i got tired of throwing up. So thank you for this video and putting this up

  69. Kati…I been eating less,fasting,restricting,over exercising,eating non-comestible things like paper and foam,skipping meals,feeling tired and cold,self harming for eat more than I though,cutting entire food groups and lost weight by doing that but still a normal weight for my age/height,so that means that I have Ednos/Osfed?
    My family dont take me seriously cause… "I dont look so sick" u know?It make me really sad and I think that I am not thin and sick enough to have an ED
    please someone give me help with this

  70. A long time…yep…I started doing this stuff when I was 7…I am 47 now….so…long time….probably never going to change now way too late for me….

  71. I think I may have EDNOS, but I don't know how to tell my therapist, I fear that I will sound stupid, what can I do?

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